Listening to patients in intensive care.

2021 
Reading ‘Locked-in Guillain-Barre syndrome: My living nightmare’ in this issue of Practical Neurology sends not one, but two shivers down the spine. The first comes from imagining oneself as the ‘48-year-old professional man with severe Guillain-Barre syndrome’, struggling with pain and dyspnoea, unable to communicate. We seldom read the very words spoken by patients in scientific journals. This article tugs us into their world, into their ‘living nightmare’. Thankfully, we can wake up when we choose. The second shiver is different. Time working as a consultant in a busy intensive care unit (ICU) often focuses on saving lives and preventing harm. Intensive care is a relatively new specialty that started when a little 12-year-old girl was ventilated during the 1952 polio epidemic in Copenhagen.1 Therefore, the …
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