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Arnaud Sandrin

Necker-Enfants Malades Hospital

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The ongoing French BaMaRa-BNDMR cohort: implementation and deployment of a nationwide information system on rare disease.

2021 Journal of the American Medical Informatics Association
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10 years of CEMARA database in the AnDDI-Rares network: a unique resource facilitating research and epidemiology in developmental disorders in France.

2021 Orphanet Journal of Rare Diseases
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Healthcare trajectory of children with rare bone disease attending pediatric emergency departments.

2020 Orphanet Journal of Rare Diseases
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