To evaluate the impact of a nurse-led JIA education program on parental satisfaction regarding knowledge of JIA and its management

Sixty children were diagnosed with JIA at RCH in 2009, 77% of these families who had undertaken JIA education were invited to complete the questionnaire used previously in the AMQuiP project. Completed questionnaires were received from 63% of families. There was a substantial improvement of between 22-48% in parental satisfaction in all education related domains. The greatest improvements were in the disease (38%) and treatment (42%) domains. The areas with the least improvement were related to self management (22%) and support services (26%). Conclusion The inclusion of a nurse-led education program has substantially improved parental satisfaction regarding their knowledge of issues integral to caring for children with JIA.