National Task Group Early Detection Screen for Dementia (NTG-EDSD)

Early identification of signs and symptoms of cognitive and functional decline associated with dementia is an important first step in managing the course of dementia and providing quality care. Studies show that persons with intellectual disabilities are as susceptible to the causes of dementia as are other adults, with the relative distribution of etiologies mirroring those of other adults. The challenge, as noted by the World Health Organization, is to identity early those adults susceptible and affected so that assessment and diagnostic work-ups can be undertaken. A screening tool can be used to substantiate changes in adaptive skills, behavior and cognition. With early detection, assessment and diagnosis can be carried out to determine whether cognitive changes are the result of a neuropathological process related to disease or trauma to the brain, or attributable to other causes, which may be treatable and reversible. The National Task Group Early Detection Screen for Dementia (NTG-EDSD) is an informant-based rating tool for use with adults with intellectual and developmental disabilities who are suspected of experiencing changes in thinking, behavior, and adaptive skills suggestive of mild cognitive impairment or dementia. This chapter offers background on the NTG-EDSD and describes benefits that may accrue from using a dementia screening instrument.