Wellbeing of mothers of children with “A-U-T-I-S-M” in Malaysia: An interpretative phenomenological analysis study

ABSTRACTBackground This qualitative study aimed to explore how mothers gave meaning to their experiences of raising a child with autism spectrum disorder (ASD) in Malaysia.Methods Using interpretative phenomenological analysis, semistructured interviews were conducted with 8 Malaysian mothers from different ethnic backgrounds (4 Chinese, 3 Malays, and 1 Indian).Results Three themes for the mothers’ adaptation and wellbeing development were identified, including Problem realisation within the context: Learning to spell A-U-T-I-S-M in Malaysia, WE are living with autism, and Resilient overcoming: Climbing Mount Kinabalu. The mothers viewed their child’s ASD symptoms and behaviour problems (e.g., hyperactivity and sleep difficulties) as taking a toll on wellbeing. However, coping strategies, including acceptance, proactive mindset, character growth, spirituality, and parent support networks, fostered wellbeing.Conclusion Both intrapersonal and interpersonal protective processes were important. The findings s...