‘Because I Don’t know’: uncertainty and ambiguity in closed-ended reports of perceived discrimination in US health care

ABSTRACTObjectiveSurveys often ask respondents to assess discrimination in health care. Yet, patients’ responses to one type of widely used measure of discrimination (single-item, personally mediated) tend to reveal prevalence rates lower than observational studies would suggest. This study examines the meaning behind respondents’ closed-ended self-reports on this specific type of measure, paying special attention to the frameworks and references used within the medical setting.DesignTwenty-nine respondents participated in this study. They were asked the widely used question: ‘Within the past 12 months, when seeking health care do you feel your experiences were worse than, the same as, or better than people of other races?’ We then conducted qualitative interviews focusing on their chosen response and past experiences. Descriptive analyses focus on both the quantitative and qualitative data, including a comparison of conveyed perceived discrimination according to the different sources of data.ResultsTo id...