The Experience of quality of life for caregivers of people with Alzheimer’s disease living in Lazio and Sardinia: a comparative phenomenological study

The aim of this study was to describe and compare the meaning of quality of life (QOL) for caregivers of patients with Alzheimer’s Disease living in the Italian Regions of Lazio and Sardinia, and to identify the factors that worsened or improved caregiver’s QOL in the two contexts. A hermeneutic phenomenological design was used to study 73 informal caregivers. The themes that emerged in relation to the meaning of QOL were: freedom, independence, having time for oneself; serenity, tranquillity; general wellbeing and good health; good financial status; unity and cooperation in the family. The themes related to factors worsening QOL were: worries about the future and illness progression; stress; fear about the future, for the care needed and the progression of the disease; continuous care, not having time for oneself. The factors improving QOL were: patients’ good health; formal and informal help in caregiving; independence from the patient; help and support from the family; reward and satisfaction for care provided; more free time; more public sensitization about AD. The similarities and differences found between the two Regions were discussed.