“I'm sure we made it a better study…” Parent carers’ and adults with intellectual disabilities’ experiences of patient and public involvement in a health research study

Ethics: The main study (protocol number 13_094R) was approved by the Independent Scientific Advisory Committee (ISAC) evaluation of protocols of research involving CPRD data in July 2013. St George’s Joint Research and Enterprise Office, acting on behalf of the study sponsor, confirmed no further ethical review was required.