EVIDENCE FOR UTILITY OF CLINICAL REGISTRIES TO SUPPORT DEVELOPMENT OF CARDIAC QBPS AND CLINICAL CARE PATHWAYS

and allied health professionals were engaged to form LTCPs and develop case reviews. This was funded through a special grant from the Doctors of BC and the BC Ministry of Health. RESULTS: Through an iterative process 22 LTCPs were developed to inform the transition for youth with arrhythmias, cardiomyopathy, and cardiac surveillance of long-term survivors of cancer, metabolic/genetic disease and structural heart disease. This process involved 21 physicians including 15 cardiologists (11 adult /4 pediatric), adolescent medicine specialists, family practitioners and oncologists. In addition 10 allied health professionals and a health economist/epidemiologist were involved. The average LTCP required at least 3 revisions before the first stage of testing and was 2200 words (range 1120 to 3270 words). LTCPs where possible referenced established guidelines and best practices in the literature. CONCLUSION: Cardiac condition specific LTCPs can be developed through a collaborative approach between pediatric and adult healthcare providers. The process of development builds relationships among providers, defines the roles of providers and fosters other elements of collaboration such as trust, respect and accountability. It also provides a forum to identify and remedy gaps in the transitional care process.