Identifying Barriers to Care and Research in Hidradenitis Suppurativa: Findings from a Patient Engagement Event

: Hidradenitis Suppurativa (HS) is a painful, disfiguring chronic inflammatory disease that disproportionately affects underserved populations. Delayed diagnosis1 and lack of uniformly effective therapies2, 3 have contributed to HS patient suffering, despair, and reluctance to seek healthcare and participate in research. In recent years, over 60,000 patients have found support and health information through Facebook communities.