The Long-Term Follow-Up from the Parents’ and Patient’s Perspective

Corrective surgery of esophageal atresia (EA) does not mean that a patient’s health is fully restored. Potential early or late complications may affect the private, social, and working life of patients and their families. Patient Support Organizations (PSOs) provide support to patients and their families by offering practical assistance. By making their own offers and proposing their own concepts, they contribute to the improvement of the patients’ medical care.