Development and psychometric validation of the family-centered multidimensional outcome measure for pediatric palliative care targeted to children with severe neurological impairmentis-A multicenter prospective study.

Sophie Pelke,Julia Wager,Benedikt B Claus,Boris Zernikow,Mandira Reuther

Development and psychometric validation of the family-centered multidimensional outcome measure for pediatric palliative care targeted to children with severe neurological impairmentis-A multicenter prospective study.

2020

Sophie Pelke
Julia Wager
Benedikt B Claus
Boris Zernikow
Mandira Reuther

Background:Comprehensive outcome measurement in pediatric palliative care focusing on the entire unit of care, that is, the affected child and its family, is crucial to depict treatment effects. De...

Keywords:

multicenter study
palliative care
Medicine
pediatric palliative care
Intensive care medicine
Prospective cohort study
outcome measures

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