329 Preparing parents for the transition from paediatric to adult cystic fibrosis (CF) care

Objectives: Research suggests preparation for transition should be family orientated, to address concerns of both the patient and their parents. A survey of parents of adolescents with CF (aged 13−17) at a UK paediatric CF centre identified several concerns relating to the transition process and an interest in receiving more information about these areas. This project aimed to deliver and evaluate an information giving event for parents, about transitions in CF. Methods: Parents/carers of 101 adolescents, aged 13−17 years, with CF were invited to an information evening about transitions − to both adult care, and adulthood with CF in general. The event was planned and delivered collaboratively by staff from the paediatric and adult CF teams. Content was based on concerns identified through a previously conducted survey. Information relating to the adult centre, including cross-infection policies and the local transition pathway was presented. The event incorporated testimonials from recently transferred families and tips for successful transfer, alongside stories from adults with CF to illustrate positive achievements and hope for the future. Conclusion: 31 parents (of 20 adolescents) attended the event and 22 completed feedback forms. All parents felt it was useful to have attended. Positive feedback related to: patient stories, increased confidence regarding transition, positive views of the adult team, information from adult team psychologist and encouragement for the future. This pilot transition event was successful and well received. The event will be incorporated into the local transition pathway and will be repeated with some modifications based on this pilot.